The Hepatitis C Education and Support Group Assistance Program (Also available through Tele-Conferencing)
The Hepatitis C Mentor and Support Group, Inc. was formed to address the lack of education and supportive services for people living with Hepatitis C, including patients Co-infected with other conditions such as, HCV/HIV and Pre/Post Liver transplant. The founder is a Hepatitis C patient and advocate.
To meet the organization’s goal, the Hepatitis C Education and Support Group Assistance Program was established to provide resources and services nationwide to hospitals, clinics, other organizations, including substance use communities, Youth, LGBTQ, and individuals wanting to establish or run Hepatitis C, and Co-infection HCV/HIV, educational patient support groups. These services are provided free of charge.
The services include:
• Training and training materials on support group meeting facilitation, education on HCV and Coinfection, harm reduction strategies, and the importance of advocacy. *One-on-one consultation with new or current facilitators is also provided*
• Tele-Support-The same training as above only provided via conference call. This has proven to be needed where it is logistically not possible to be, for those in remote areas or for those who cannot attend in person. This fills various needs such as trainings for facilitators and support groups for patients in areas where there is no support and education available.
• A roster of experts to speak at support group meetings on topics such as Hepatitis C disease and treatment research findings, drugs in development, harm reduction strategies, navigating insurance, nutrition, relaxation and other lifestyle issues.
• An informational website (www.hepatitisCmsg.org), blog, and social media updates to help facilitators and their medical advisors stay up-to-date on other Hepatitis C-related sites, reports and conference highlights, disease and treatment research, drugs in development, training and advocacy opportunities, and other topics of interest. The website includes a list of all Hepatitis C support groups in New York State. It also includes information on programs to help uninsured or underinsured patients get treatment drugs at reduced or no cost.
• HCMSG Patient Support Newsletter is geared to help patients, with questions to ask medical providers, definitions of medical terms, provides resources such as patient assistance programs, and the latest information on new and future treatments collaborated and provided by medical advisors from leading New York hospitals.
• Meetings and conference calls with medical providers and support group facilitators to share information, resources and best practices.
The Hepatitis C Education and Support Group Assistance Program acts as a central hub for Hepatitis C support group facilitators to provide accurate and up-to-date information and facilitate the sharing of resources and skills.
Click here to learn about our 2017 Enhanced Program
For more information about these services, contact Ronni Marks at 917-612-2731, or [email protected]. You can also visit The Hepatitis C Mentor and Support Group, Inc. website at www.hepatitisCmsg.org.
Support for this program provided by Gilead Pharmaceuticals, Merck and Company, Boehringer Ingelheim Pharmaceuticals,Bristol-Meyers Squibb, AbbVie, and Janssen Therapeutics.
The Hepatitis C Mentor and Support Group, Inc. was formed to address the lack of education and supportive services for people living with Hepatitis C, including patients Co-infected with other conditions such as, HCV/HIV and Pre/Post Liver transplant. The founder is a Hepatitis C patient and advocate.
To meet the organization’s goal, the Hepatitis C Education and Support Group Assistance Program was established to provide resources and services nationwide to hospitals, clinics, other organizations, including substance use communities, Youth, LGBTQ, and individuals wanting to establish or run Hepatitis C, and Co-infection HCV/HIV, educational patient support groups. These services are provided free of charge.
The services include:
• Training and training materials on support group meeting facilitation, education on HCV and Coinfection, harm reduction strategies, and the importance of advocacy. *One-on-one consultation with new or current facilitators is also provided*
• Tele-Support-The same training as above only provided via conference call. This has proven to be needed where it is logistically not possible to be, for those in remote areas or for those who cannot attend in person. This fills various needs such as trainings for facilitators and support groups for patients in areas where there is no support and education available.
• A roster of experts to speak at support group meetings on topics such as Hepatitis C disease and treatment research findings, drugs in development, harm reduction strategies, navigating insurance, nutrition, relaxation and other lifestyle issues.
• An informational website (www.hepatitisCmsg.org), blog, and social media updates to help facilitators and their medical advisors stay up-to-date on other Hepatitis C-related sites, reports and conference highlights, disease and treatment research, drugs in development, training and advocacy opportunities, and other topics of interest. The website includes a list of all Hepatitis C support groups in New York State. It also includes information on programs to help uninsured or underinsured patients get treatment drugs at reduced or no cost.
• HCMSG Patient Support Newsletter is geared to help patients, with questions to ask medical providers, definitions of medical terms, provides resources such as patient assistance programs, and the latest information on new and future treatments collaborated and provided by medical advisors from leading New York hospitals.
• Meetings and conference calls with medical providers and support group facilitators to share information, resources and best practices.
The Hepatitis C Education and Support Group Assistance Program acts as a central hub for Hepatitis C support group facilitators to provide accurate and up-to-date information and facilitate the sharing of resources and skills.
Click here to learn about our 2017 Enhanced Program
For more information about these services, contact Ronni Marks at 917-612-2731, or [email protected]. You can also visit The Hepatitis C Mentor and Support Group, Inc. website at www.hepatitisCmsg.org.
Support for this program provided by Gilead Pharmaceuticals, Merck and Company, Boehringer Ingelheim Pharmaceuticals,Bristol-Meyers Squibb, AbbVie, and Janssen Therapeutics.